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For decades the idea of eugenics has been taboo. Now it is returning in a new commercial guise For a very long time, I dreamed of being cured. I was born in 1981. I learned to walk early enough, but I stumbled and fell more easily than other children. My parents began to worry that something was wrong, that my muscles were weaker than they should be. Eventually, at the age of three, I was diagnosed with a form of spinal muscular atrophy (SMA). In the 1980s, the precise mechanics were not yet understood, but the condition was known to be hereditary, probably linked to a recessive gene. It was also known to be progressive. As I aged, my muscles would not keep pace. At eight, I began to use a wheelchair for longer distances. By the time I was 18, I rarely walked outdoors any more. It is hard to be young and to know that you are growing weaker rather than stronger. I had all the same aspirations that my nondisabled friends did, but I lived in fear of the future in a way they did not. I spent a lot of time thinking about what my life would have been like if I didn’t have SMA. The images in my head were of something like a double: myself, only rid of this one deficit, imprecisely defined, but encoded somewhere in my body. Continue reading...

As members of the public tour a fake ‘residential home’ for disabled people riddled with Nazi ideology, you desperately hope someone will speak up. Prepare for the most excruciating viewing of your life I have never had to pause a programme halfway through before to catch my breath. That is until The Experiment – Channel 4’s highly controversial social exercise designed to find out “how susceptible the British public are” to Nazi ideology about disabled people. This is a show so disturbing, timely and surreal that within 90 seconds of viewing it alone, I am looking around for confirmation from an empty room that any of this is happening. We start with a clip of Hitler. Against a backdrop of growing anti-benefits and ableist rhetoric, presenters Mat Fraser and Sophie Morgan fear the disabled community globally are once again being framed as a financial burden. Their question is: can the British public be persuaded that disabled people should live in “money saving” segregated institutions and be given low-skilled jobs to be productive? Continue reading...